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Government urged to facilitate centres for children with cerebral palsy

Accra, July 7, GNA – Mr Emmanuel Asante,
Care-giver and grandfather of a five-year-old girl with cerebral palsy is
urging government to facilitate the creation of centres for children with
cerebral palsy.

He further called for services such as
physiotherapy and other therapies to be extended to homes of children with
cerebral palsy to enhance their quality of life.

“Children with cerebral palsy tend to get
heavier as they grow and it becomes almost impossible to carry them for
services such as physiotherapy in the hospitals,” Mr Asante said in an
interview with the GNA.

Mr Asante a pensioner, who is struggling to
take care of his five-year-old grand-daughter, said it was important to train
parents with basic skills in physiotherapy to prevent the children from getting
contractures due to care givers inability to take them for services they
needed.

Having centres for children with cerebral
palsy for instance in every district will also enable the parents to leave
their children in good hands to enable them work and earn a living.

Mr Asante said it will be absurd for him to
even think of sending his granddaughter to school but having a centre for the
children will give the family a lot of relief.

Recounting his journey as a primary care-giver
for his granddaughter, he said “her condition put a huge strain on our
finances, we use to take her for physiotherapy services at Korle-bu but as she
grew older, we could no longer afford the cost.”

He explained that he always had to hire a taxi
to take her in addition to the cost of the physiotherapy; we could no longer
afford the drugs such as anticonvulsants.

Five-year-old Nhyira with cerebral palsy now
needs an urgent surgery, she is deaf and blind. Mr Asante urged government to
support families with children who have cerebral palsy by including them as
beneficiaries of the Disability Funds.

He also called on the public to come to their
aid and help put a smile on Nhyira’s face.

“Having a child with cerebral palsy requires a
lot of finances, yet many parents and care-givers are unable to work since they
have to take care of these children all the time,” he added.

Cerebral palsy is a neurological disorder that
affects the movement and sometimes speech of children.

Mrs Hannah Awadzi, Initiator of the Special
Mothers Project, an advocacy and awareness creation programme on cerebral palsy
in Ghana, said there was the need for an umbrella body that coordinated the
activities of individual organizations working on cerebral palsy.

Such coordination, she said, would help point
parents and care givers to the right services they needed and will enhance the
advocacy campaign.

GNA

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